We should all be doing what we can to prevent the spread of coronavirus to help protect ourselves and others. Coronavirus is a viral infection that affects the lungs. Vaccination helps you build immunity to the virus, so your body will stop the infection more easily. Your support can help us to continue being there for everyone who needs us. Flu can be a serious illness, especially if you’re living with a lung condition. If you'd like to be kept updated, please enter a valid email address. The government will be sending letters to 1.5 million people in England urging them to self-isolate for an extended period amid warnings the coronavirus outbreak is "accelerating”. Children who live with parents or siblings who are shielding can return to school if they wish, but should speak to the shielded person’s sp… Make sure you always carry your steroid card with you. These people belong to a group described as ‘clinically extremely vulnerable (CEV)’, formerly known as the ‘shielding group’. If you have received a letter and have been prescribed either triple therapy or Roflumilast and think your COPD is not severe, talk to your GP or hospital specialist. Read our detailed information about what you should do if you live with an ILD. What’s the difference between self-isolation, social distancing and social shielding? In this situation, doctors will need to give you extra steroids when treating you. Yesterday we explored what we have learned about COVID-19 symptoms, risk factors and efforts to develop treatments and vaccines. Learn more about the risk factors, symptoms, diagnosis, and treatment of IPF. Our helpline is here to answer questions you may have and listen to your concerns. These include: But some people who take this sort of medicine may only have mild COPD. If you lose it, you can get a replacement from your pharmacy or GP. Will door handles and surfaces be cleaned regularly? Unlike at the start of the pandemic, advice for people in the shielding group might differ, depending on how affected the area you live or work in is. For more information on Scotland’s COVID forecasting service, visit the government’s website. You can find out which tier you are in on the government website. But if your lungs are extensively damaged or inflamed as a result of active TB or past TB, you may be more at risk of developing a chest infection after a coronavirus infection. Respiratory crisis in these patients may be a result of viral pneumonia, airways disease worsening due to the viral trigger effect or other known triggers for airways disease worsening People with severe COPD. Whatever tier you’re in, it’s important you get the care you need to keep you safe and well. In an emergency, call 999 if you are seriously ill. As well as a steroid inhaler, this must include two long acting preventers. Most people, even if they are on inhaled steroids, do not require such a high dose. New guidance and local support is being implemented to help shield around 200,000 of the most at-risk Scots from coronavirus (COVID-19). Read more about, go outside for exercise, but try to avoid busy areas, avoid socialising indoors with people who aren’t in your household. What is pneumonia, symptoms and diagnosis, Acute respiratory distress syndrome (ARDS), Submit a review of our health information, Stories about living with a lung condition, Positions for obstructive lung conditions, Positions for restrictive lung conditions. It’s important to get out for daily exercise and find ways to boost your mood, as this will help you stay fit and well. People with a range of long-term lung conditions are in this group if their condition is severe. The UK government says that people with severe COPD (also called emphysema or chronic bronchitis) need to go into something called shielding to protect themselves from coronavirus (COVID-19). VAT number 648 8121 18. The more people you see, the more likely it is that you will catch or spread coronavirus. You might have heard that in England, people on the shielded patient list will be offered a free winter supply of vitamin D. If you live in England and are clinically extremely vulnerable, you’ll be sent a letter offering you the supplements. Areas in England have been placed into 3 tiers: medium, high and very high alert. People with rare diseases and inborn errors of metabolism that significantly increase the risk of infections (such as SCID, homozygous sickle cell). Not everyone with Crohn's or Colitis will have an increased risk of complications from coronavirus, but some may need to take extra precautions. Will it be possible to stay 2 metres away from people I don’t normally live with? Local councils have a list of people who are on the shielded patient list in their area and will be able to help arrange support where you need it. 4. breathing techniques to help bring up sputum, Mental Health Foundation’s advice about coping at this time. Make sure you do this in a well-ventilated room, and away from other members of your household. Ask your health care professional if you are unsure. If you’d like to see our references get in touch. If you live in a tier 3 area and don’t have someone you can rely on to go shopping for you, you can register for support on the government website. For the most up to date advice on face masks, including who should be wearing them and where, take a look at our page on face coverings. You can change your mind at any time. If you've benefited from this advice today, if you can, please make a small donation to help ensure we can give you the support you need now and in the future. This makes it difficult to give blanket advice about the level of risk from having a lung condition. If you have to use public transport, consider travelling outside of peak hours to avoid the amount of people you come into contact with. Think about how you’re getting to and from work. We desperately need support to continue when shielding is paused. Please confirm that we can keep in touch with you by email, We'll take good care of your personal info and you can update the way we contact you at any time - check out our privacy policy at blf.org.uk/our-privacy-policy to find out more. If your condition is not included or you are not sure, have a look at these criteria: If you meet any of these then it is likely your condition makes you especially vulnerable to coronavirus. It’s likely your GP practice and hospital specialist have changed the way they can work and consult you. Within each level there is specific guidance for people on the shielded patient list. If possible, ask someone to bring items to your home so you do not have to travel outside. As a charity, British Lung Foundation provides free health advice to millions of people through our website and our specialist helpline - a team dedicated to offering life-changing advice over the phone. The coronavirus (COVID-19) shielded patient list is enabling partner organisations across government to support and protect those who need shielding at this time. request access to a priority supermarket delivery slot, tell your council if you need support, especially if you are unable to arrange this yourself or with the help of friends, family or other support networks, collecting food, medicine and other essential supplies. Going into work if I'm clinically extremely vulnerable. It gives tips on things you should do when you come in from home. This should help you to have the best possible lung function and the least risk of getting an acute exacerbation or flare-up. Wherever you live in the UK, you should work from home if you can. How will I recover if I’ve had coronavirus? This includes: But it isn’t the only factor that increases your risk. If you get the usual signs and symptoms of a flare-up: increased breathlessness, you produce more sputum and there’s a change in its colour and consistency, and you cough more, follow your flare-up plan, including taking antibiotics and steroids if you have them at home. We cannot reply to comments left on this form. From 1 June 2020, nurseries in England will reopen and children in certain year groups will be allowed back to school. Severe COPD means that: You are too breathless to walk 100 yards You can also register for support from your local COVID-19 Mutual Aid Group. How is pulmonary hypertension diagnosed and treated in children? 2. The measures are tailored towards supporting people with the highest risk of severe illness from the virus, as … Please visit PHA UK for more information. During the winter months, the NHS recommends taking a daily vitamin D supplement, as this helps to keep your bones healthy. Things that are important to you are more likely to happen if you can share your wishes in advance. Due for review: December 2020. But for some people, the risk is higher. This advice is for people who have received a letter from the NHS or their GP saying they're at … Can I be sat next to people I normally live with? As a charity, British Lung Foundation provides free health advice to millions of people through our website and our specialist helpline - a team dedicated to offering life-changing advice over the phone. ), but try to avoi… If you have health concerns or need clinical advice, call our helpline on 03000 030 555 between 9am and 5pm on a weekday or email them. 4. You can read more about the five-level system and what it means for you on the gov.scot website. Read on for updates on the efforts to reopen states, why people with COPD might have to wait longer and policy issues that we are following. opt-in to receive your free supply of vitamin D, why you should get the flu vaccine this year, follow the guidance for the tier you are in, going into work if you are clinically extremely vulnerable, specific guidance for the tier you are in, read more about the measures on the government website, five-level system and what it means for you on the gov.scot website, guidance for people living in Northern Ireland, Cystic Fibrosis Trust has developed guidance, register for support on the government website, support for people in the shielding group in Scotland, dealing with your mental health while living with a lung condition, guidance for people to help look after their mental wellbeing during the COVID-19 pandemic, severe chronic obstructive pulmonary disease (COPD), interstitial lung disease, including pulmonary fibrosis and sarcoidosis, non-tuberculous mycobacteria pulmonary disease (NTM). It remains essential to wash your hands often with soap and warm water for at least 20 seconds. Coronavirus and living with a lung condition, Guidance for the clinically extremely vulnerable. Shielding updates – advice for clinically extremely vulnerable people. We know you might be feeling anxious about what the next few months might look like. Get support to stop smoking from your health care professional or get in touch directly with NHS stop smoking services, who can help you by phone, video or email. Reducing your risk of catching COVID-19. If you can’t find a resolution, you should contact your trade union, Health and Safety Executive or get advice from ACAS. Find out more about how technology can help you manage your health care in our guide. GPs and hospital clinics have identified people with severe COPD who have been missed by the medication approach to add them to the list. Congenital pulmonary airway malformation (CPAM), Non-tuberculous mycobacterial infection (NTM), Connective tissue and autoimmune diseases, Pulmonary haemorrhage (bleeding into the lung). The number for this helpline is 0800 111 4000. There are 2 levels of higher risk: high risk (clinically extremely vulnerable) And not everyone who has severe COPD is on triple therapy. How is pulmonary hypertension diagnosed and treated in children? Coronavirus: what it means for you if you have heart or circulatory disease Updated 15 December 2020. Carry on taking your inhaled medications and any tablets and continue to use your nebuliser if you have already been given one, and prescribed medication to use in it, by your health care professional. Last medically reviewed: December 2020. Your living with a lung condition stories, Information for health care professionals, Stoptober: the 28-day stop smoking challenge, Putting on your Take Steps sponsored walk, Taking the first step: Millets’ guide to walking, Big Breakfast for schools - activity ideas, Top tips for organising a brilliant charity quiz, Incredible support from trusts and foundations, Gwybodaeth yng Nghymraeg / Welsh language health information, The Asthma UK and British Lung Foundation Partnership, Why you'll love working with the British Lung Foundation, Thank you for supporting the British Lung Foundation helpline, maintain strict social distancing, wash your hands regularly and avoid touching your face. Or you could use this pulmonary rehabilitation pack that includes exercise and education. Talk to your health care professional on the phone or by video if you’re feeling anxious or depressed. In Scotland, the national COVID-19 helpline is open Monday to Friday, 9am to 5pm. Your health care professional will not be able to give you more than a month’s supply of your medication during these times. She’s been shielding since March. If you smoke, stopping smoking now will reduce your risk from getting very unwell if you get coronavirus. If you've benefited from this advice today, if you can, please make a small donation to help ensure we can give you the support you need now and in the future. We’d love to keep in touch to tell you about our work, our fundraising activities and other ways you can get involved. 1. We are very aware of how worrying a time this is for everyone. It’s reasonable to ask ahead about arrangements, to help your decision. Do not share your inhalers with anyone else. Would you like to keep in touch by email? Age is the biggest risk factor, with those aged 80 and older at a greater risk of becoming seriously ill with coronavirus. Establish a COVID-19 hygiene routine for people entering home (i.e using hand sanitizer, handwashing, etc. It meant staying at home almost all … How can I improve the air quality in my home? The first approved COVID-19 vaccine is being rolled out across the UK. Idiopathic pulmonary fibrosis (IPF) is a rare lung disease that causes scar tissue to grow inside your lungs. Find out how we produce our information. VAT number 648 8121 18. Details of the support that’s available to you will be in the letter you’ve been sent by the government. Despite anything you may have seen elsewhere, there is no evidence that steroid inhalers make people more susceptible to COVID-19. Take a look at our COVID-19 vaccine FAQ, which will help answer some of the questions you might have. There are resources online to help you. Others may get a letter following reviews by hospital specialists and GPs. If you live in a level 4 area in Scotland and your employer cannot make your workplace COVID-safe, you can get a letter similar to a fit note for as long as your area is under level 4 restrictions. These include: The groups listed above cover most lung conditions. People with a diagnosis of pulmonary hypertension are regarded as vulnerable. Don’t take your rescue pack if you only have these symptoms. If you live with chronic obstructive pulmonary disease (COPD), you already think a lot about your breathing and your lung health.COVID-19, the respiratory illness that the new coronavirus … If you’re feeling low, please take a look at our information on dealing with your mental health while living with a lung condition. What’s the difference between self-isolation, social distancing and social shielding? How many people will be there? If you live in one of the worst affected local areas, you might be advised to shield again, but this time it will be for a limited period of time. If you’d like to see our references get in touch. You can read more about this on our dedicated shielding page. If you’re struggling and need support, you can contact the COVID-19 Community Helpline: People in the shielding group in Wales can still benefit from priority supermarket delivery slots if they don’t feel comfortable going to the shops. Asthma UK and British Lung Foundation Partnership is a company limited by guarantee 01863614 (England and Wales). It’s important you follow social distancing advice particularly carefully and continue to self-manage your condition well. Carol has emphysema, a form of chronic obstructive pulmonary disease (COPD). Download 15 page PDF. If you haven’t done so already, register with your GP practice for online services including prescriptions. Shielding has been paused in Wales and Northern Ireland. In Wales, Northern Ireland and Scotland, people in the shielding group can go into work providing your workplace is COVID-safe. What is pneumonia, symptoms and diagnosis, Acute respiratory distress syndrome (ARDS), Submit a review of our health information, Stories about living with a lung condition, Positions for obstructive lung conditions, Positions for restrictive lung conditions. Find out how we produce our information. People who’ve had a prescription for Roflumilast most recently in November 2019 or December 2019. meet any of the criteria that are on the list under COPD, are taking long-term antibiotics such as inhaled antibiotics or macrolides, have 3 or more flare-ups or exacerbations a year, Mycophenolate Mofetil and Mycophenolate Sodium, Having in the last 6 months received intravenous Cyclophosphamide, Rituximab or Infliximab, you have to stop walking after 100m or so because of breathlessness, even at your own pace, you have had to be admitted to hospital in the last year because of an acute attack of the lung condition. This information uses the best available medical evidence and was produced with the support of people living with lung conditions. It’s important to ensure that your routine oxygen needs will be met. Your support can help us to continue being there for everyone who needs us. You can also register for support from your local COVID-19 Mutual Aid Group. How big is the space? It will also reduce the risk of flare-ups, also called acute exacerbations, of your symptoms. This is because there are good records of prescriptions that people have received. Evidence has shown there is a very low risk of children becoming seriously ill from COVID-19, even if they have an existing health condition. It is useful in emergency situations, as your body may not produce enough natural steroids to help you deal with illness or injury. It’s being offered in stages and when it’s your turn to get the vaccine, you'll be contacted. Would you like to keep in touch by email? People in this group will not be expected to go to school or college. You might want to ask: And remember, if you don’t feel comfortable forming a Christmas bubble, don’t feel pressured to. You should only follow this guidance if you are contacted by the government. If you have a fever or a new continuous cough or a loss or changed sense of normal small or taste, contact the NHS 111 online coronavirus service. Each tier has different restrictions and guidance for what you can and cannot do. Asthma UK and British Lung Foundation Partnership is a company limited by guarantee 01863614 (England and Wales). In some people, this can progress to a serious illness. Your living with a lung condition stories, Information for health care professionals, Stoptober: the 28-day stop smoking challenge, Putting on your Take Steps sponsored walk, Taking the first step: Millets’ guide to walking, Big Breakfast for schools - activity ideas, Top tips for organising a brilliant charity quiz, Incredible support from trusts and foundations, Gwybodaeth yng Nghymraeg / Welsh language health information, The Asthma UK and British Lung Foundation Partnership, Why you'll love working with the British Lung Foundation, Thank you for supporting the British Lung Foundation helpline, Read why Dr Noel Baxter, a GP, suggests you should think about. What should people who are clinically extremely vulnerable (CEV) do? We cannot reply to comments left on this form. Some people with cancer may be at a higher risk of getting coronavirus (COVID-19). Re living with a lung condition to be kept updated, please fill the. 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